I've Getting Itchy Bumpy Rash For 6 Months I'll Get Itchy , Scratch ,and Then It Gets Red And Hot And Then Goes Away

A myGVHDteam Visitor asked a question 💭

It moves after the scratching and hot red skin and bumps just move to a another area of my body wakes me up and from scratching starts to bleed . Now tongue gets ulcerated and tongue also gets larger and maje it hard to to talk ? Any ideas anyone so out of answers

5 days ago
myGVHDteam

What could cause an itchy, bumpy rash that moves around the body along with tongue ulcers and swelling after a stem cell transplant?

The symptoms you're describing sound consistent with GVHD affecting both your skin and mouth. The itchy, moving rash that gets red and hot is a common feature of GVHD skin involvement. The Show Full Answer

What could cause an itchy, bumpy rash that moves around the body along with tongue ulcers and swelling after a stem cell transplant?

The symptoms you're describing sound consistent with GVHD affecting both your skin and mouth. The itchy, moving rash that gets red and hot is a common feature of GVHD skin involvement. The fact that it's been persistent for 6 months and causes bleeding from scratching suggests this needs medical attention.

Your tongue symptoms are particularly concerning. GVHD can cause:
- Painful ulcers on the tongue
- Swelling that makes talking difficult
- Increased sensitivity

These oral symptoms appear in 45-83% of people with chronic GVHD and are often among the first signs. It's really important to contact your transplant team or doctor right away about these symptoms, especially since:
- The rash is severe enough to bleed
- Your tongue swelling is affecting your ability to speak
- Symptoms have persisted for 6 months

Treatment typically starts with topical steroids for skin GVHD. For mouth symptoms, doctors may prescribe special mouth rinses, medications, or saliva substitutes to help with healing and pain relief.

Don't try to manage this alone - your medical team needs to evaluate whether this is GVHD flaring or something else requiring immediate treatment.

5 days ago
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